Friday, May 16, 2014

A+ Check-Up

It's hard to believe that we are now nearly 4 months post- op for Riley, time has really flown by.  I must say for the most part this process has been way easier than I could have imagined.  Today I took Ri up to Walnut Creek for her 1 month post-cast check up with Dr Hoffinger.  I can't believe she's been out of her cast for a month, it sort of seems longer but she is now well adjusted to her AFO and is walking without it on at night, it's been so hot here that I've been letting her walk around after her bath in the evening without her AFO or socks to help keep her foot less sweaty, I got in a little trouble for that but I am beyond thrilled to say she got an A+ checkup.  Her feet (both of them) look absolutely beautiful, especially her operated one, I can't get over the transformation.  Every night Riley puts Mederma and lotion on her scars and we do stretches.  Well, it paid off because her flexibility was top notch today, he was so pleased with her correction and the placement of her tendon was perfect.  I feel about as elated as Anna in Frozen when they finally opened the castle gates (yes, I just compared myself to Anna from Frozen, don't judge, I basically watch Frozen and Monsters Inc between the two kids peppered in with some baseball at the request of Marc).

It's been a long, hard journey but I think we might be there.  I am still filled with a ton of guilt that I have somehow done something wrong to put Riley through this, which logically I know is ridiculous but I've learned the heart of a mother isn't always rationale.  I still cry on the inside daily at the unknown future struggles that Ri may face, it seems a lot of the future of "clubfooties" is unknown with the Ponseti treatment because it's so new but I worry about pain, about her not being able to do all of the things that she wants to do because her feet limit her and I feel guilty because I can't protect her from this.  It's been a hard year so far with all of this.  I was talking to a co-worker whose niece had clubfoot and who has 3 girls herself with their own struggles this week at work and she gave me the biggest compliment.  She said on the outside looking at me, through all of this I have come across so composed and brave.  I laughed and told her I was breaking on the inside, especially leading up to the surgery but I knew I had to hold it together for Riley, this is the fate and the path we were given and we could either be a victim and complain and whine about it, or take it head on, for Riley's sake, we took it head on.  It's not a path I would have openly chosen, I know it could be a lot worse, but it could also be a lot better.  I know if I wasn't worrying about her feet, I'd be worrying about something else but instead I worry about all of the normal stuff a mom worries about plus her feet.  The list of worries are endless but I worry most about her future and what it will bring for her, will kids notice and tease her, will she have extreme pain, will she need more surgeries, the list goes on and on.  

But for today, we are happy; me because her surgery looks successful, her right foot is maintaining correction and flexibility without surgical intervention.  And Riley because, though she has at least another month in her AFO, she's allowed to go swimming at a birthday party tomorrow and do anything she wants except for trampolines or bouncy houses.  So today, I'll forget about the unknowns of tomorrow and take the win I can get.

Waiting to see Dr Hoffinger

Our traditional picture, she says we always have to take a picture no matter what!

I posted this one on Facebook, I don't think I had ever posted a picture of her feet pre-treatment, I don't know if I was embarrassed or afraid but the stark difference in her feet at 11 days versus post-treatment is astounding.  I can't believe what medicine has done for Riley.  I can't help but think how happy my Poppa would if he knew how her feet turned out!


Monday, May 12, 2014

More Mommy/Riley Time

I just can't get enough of this smile.  Marc dropped Riley and I off at Panera and Target while he took Jacob to basketball Saturday.  Jacob gets too distracted with all of us there so we had a hot beverage and then hit up Target while they played basketball!


Sunday, May 11, 2014

Playing Hooky!

I took Friday off and took Riley to Six Flags with her friend Bella and her mom, Jen.  It was a super fun day and the girls were SO excited to be there.  Poor Ri was about a 1/4" too short to ride the rides by herself so I had to go with her.  My neck is super sore today, I must be getting old!  But we had a great time.  The rollercoasters weren't nearly fast enough for Riley and Bella but they had a blast and Riley's foot held up pretty well walking all over the park for 5 hours, I think she might be Disneyland ready!  We even rode a real elephant which was SUPER cool!

All ready to get the rollercoaster riding started!

On our first ride!

If that smile doesn't say fun, I don't know what does!

Nacho chompers!

Watching the dolphin show

Another fun one!

Still smiling after a full day

Now that's what I call a good day!

Saturday, May 10, 2014

Unders!

Guess who is potty training...



THIS GUY!  Jacob's friend Isaac (though if you ask him if Isaac is his friend he says "No Easton my friend!") is wearing underwear to school now so Jacob is all about wearing his unders, he's very good about going pee in the potty, he'll even go on his own sometimes.  Riley's teacher has all of the preschoolers in the AM and she said she was impressed by Jacob because most of the kids when they are potty training won't go potty in other classrooms but Jacob just walks in, pees, pulls up his pants, washes and goes on his merry way.  #2 has been a bit of a struggle, we got one in the potty but the rest have been less successful.  He is SUPER proud of his big boy behavior though!  And how cute does El Chupacabra look on that tooshie!?!